The Carcinoid Cancer Foundation has teamed up with The Balancing Act and Advanced Accelerator Applications to raise awareness about carcinoid and neuroendocrine tumors (NETs) during a feature on Lifetime TV on February 28 (Rare Disease Day) and March 8.

Behind the Mystery: Rare and Genetic Diseases features Judy Golz, a carcinoid patient sharing her story; and Matthew Kulke, MD, Director of the Program in Neuroendocrine and Carcinoid Tumors at Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical School, providing insights into these rare tumors.

Tips for those newly diagnosed with carcinoid syndrome. Jennifer Zuniga provides insight into how to become your own best advocate. For more information about carcinoid syndrome, please visit the Carcinoid Cancer Foundation's website, www.carcinoidsyndrome.org.

It was 2004 and Pat and Chuck were preparing to move to a new home - life was good, personally and professionally. Then Pat suddenly developed what the doctor thought was bronchitis. When she went into heart failure they discovered a neuroendocrine tumor on her bronchus. Chuck became the researcher, the person Pat could turn to for answers, for emotional support, for loving care; he is her advocate.

Shock was Dana's first reaction when she was diagnosed at age 31 with neuroendocrine tumors throughout her body. Her boyfriend couldn't cope with her diagnosis and Dana found herself alone, her world turned upside down. And then came Brien . ..

Beth asked the doctor to remove her appendix while having surgery on her gallbladder. She had a feeling something bigger was going on . . .she was right.

This video is part of a series in celebration of the Carcinoid Cancer Foundation’s 50th anniversary in 2018, made possible by the generous support of Lexicon Pharmaceuticals as part of the Fit-to-Fight series.

Mark was only 11 years old when he was diagnosed with lung neuroendocrine cancer. Here's how life changed for this husband and dad who is now in his thirties.

This video is part of a series in celebration of the Carcinoid Cancer Foundation’s 50th anniversary in 2018, made possible by the generous support of Lexicon Pharmaceuticals as part of the Fit-to-Fight series.

Please visit our website for more information about carcinoid and neuroendocrine cancer, www.carcinoid.org.

Tips for those newly diagnosed with carcinoid syndrome. Jennifer Zuniga provides insight into how to become your own best advocate. For more information about carcinoid syndrome, please visit the Carcinoid Cancer Foundation's website, www.carcinoidsyndrome.org.